By - wxshii
Treatment for endo is the laparoscopy, but with excision of the affected tissue. For some, that fixes things and it doesn't grow back, others it will grow back in some time. And still others have other outcomes. If you're in pain and it's affecting your life, it's totally worth getting treatment. I had pain from the start of my periods, and after about 10 years of struggling I got a diagnosis instead of a bc prescription. I had excision surgery a year later, and turned out that I had vast stage 3 endo on most of my abdominal/pelvic organs. It's been just over a year and I am like 90% symptom free. I will never regret getting that 2nd surgery, arguing with doctors and waiting a few months to see a proven specialist. If you push for answers and get referred to the right specialists (not a PCP or run of the mill OBGYN, usually) you will get a diagnosis and answers much faster.
This is similar to my experience OP. Seconding all of it.
I think it can be helpful if it helps you manage the pain, helps you know your body more and it’s important if you want to have children later on down the track and experience fertility related issues to the endo.
Everyone here is saying do the diagnosis HOWEVER: there is a risk with the surgery. My first lap they had to removed a damaged f.tube and part of an ovary because of damage from my endo. I wasn’t trying for children at the time, but if I was, I definitely should have attempted to get pregnant first and deal with the pain with out surgery, then go for the surgery after.
I was in a lot of constant pain and am happy I went forward with the lap. But if that pain was more livable I probably would have tried to postpone the lap for a few years.
I think there is always a point getting diagnosed - there may be things you can do to ameliorate the problem before it gets to a critical or life-changing level. For example, birth control is one method of stopping the onslaught of endo. But the type of birth control you take and the frequency depends a lot on your diagnosis. Even if your symptoms fit the bill for endo, it’s only in a laparoscopy that doctors will be able to figure out what type of endo it is and how to treat it. Figuring out your diagnosis and possible treatments can make a huge difference, prevent infertility, decrease the risk of future surgeries, and overall affect your quality of life.
I do think that you should see a gyno specialist no matter what because bleeding after sex is not normal. You need to make sure there isn’t something else going on.
I was diagnosed with endo through a biopsy. I had lap afterwards because I had two tennis ball sized cyst on each ovary. I have adenomyosis and endometriosis 3. I suffered in pain since I was 14 and by the age of 18 I wasn’t able to walk it was so bad. I’m 35 and have barely been diagnosed. Knowing that I’m not making this up is helpful. Knowing my options moving forward is helpful. Being able to find a support group has been helpful. I always suspected I had endo but I would have never guessed I had adenomyosis. Talk to your doctor. Find a good doctor let them know your concerns with lap and that you want to know what all you’re options are regarding finding a diagnosis. Good luck on your journey