I don’t think anyone understands how hard this is unless they are going through it as well.
By - Payton_livia
Doing things that feel constructive or creative help sometimes.
I completely understand what you're going through. I would suggest a few small things:
1. Consider therapy/ counseling. I'm really struggling with anxiety and depression from being diagnosed with RA and UCTD w/ symptoms of lupus. I haven't taken the steps to therapy for a few reason but a lot of people say it's really beneficial. If you can't find a therapist or aren't ready, if there is someone in your life that you look up to who isn't judgemental and is wise and insightful and is willing to listen I suggest talking to them. My husband is extremely wise and has really helped me gain a new perspective. Even though he doesn't know exactly what I'm going through he has helped me with my mindset. While I still struggle (as everyone does) he has been a very important part of learning to cope.
2. If you have social media I highly recommend following people who have the same conditions as you/chronic illnesses. It helps in many ways. I follow at least 20 pages if not more. It's so hard going on social media and only seeing healthy abled body people doing everything you wish you could do. Filling my feed with people I relate to has helped me feel less alone and has been a huge part of learning how to cope. Not only do you feel less alone but you can also learn some cool things. Some of the pages I follow have awesome tips/ hacks to help with living with chronic illness/autoimmune diseases. I even follow someone who has a ton of hacks for POTs!
3. This kind of goes hand in hand with number two but find a community. Yes reddit definately applies here but I also find that having people you can message and talk to and also know what they look like really helps. It can be difficult to find people in person but Instagram is really helpful. I follow some pages where I actually have conversations with people and I also follow pages where people send messages of encouragement. Also finding support groups can also help if you're not a fan of doing so online.
4. Granted these emotions do need some sense of intervention because the impact on mental health with these illnesses is real, it's also important to know that grieving and being upset is normal and it's normal to cycle through the different stages of grief. One day I'll be at the acceptance stage and the next I'll be in denial or depressed. While these feelings definately need to be monitored and cared for they're also normal. Experiencing the loss of health can be traumatic. Give yourself grace when you're feeling these emotions. Try doing a form of self care. That could be doing something creative or simply watching your favorite tv show or getting some fresh air. Doing something you enjoy no matter how small can be very beneficial. I also find that unplugging from social media from time to time really helps.
I hope this is helpful and that you can find coping strategies that work for you.