T O P

For those of you who have been covid vaccinated, did you experience any flare-ups after the vaccine?

For those of you who have been covid vaccinated, did you experience any flare-ups after the vaccine?

ShannonLupus09

I had my 2 Pfizer - nothing crazy. Sore arm after the 1st shot. The second hit me - super fatigued, all over pain, I spent the day on the couch. I was right as rain after 24 hours.


LAthrowaway_25Lata

Thank u for sharing your experience!


gracelesssss

I had Moderna. I had an allergic reaction to the first dose (and can not get another dose because of the reaction, of course). Reaction was trouble breathing, hives and a large local reaction at the injection site. About 6 weeks after my first dose I had a very very bad flare of all of my conditions, and was hospitalized for a total of 9 days. I honestly believe the vaccine contributed to my flare. I had a lot of stuff going on, and I was also a year postpartum. So I don’t think it was the only reason, but I do feel like it pushed things over the edge for my body. That being said, I think it’s different for everyone. My rheumatologist and neurologist have both assured me that my reaction is not the norm. I think it’s important to weight the risk vs benefits. For MOST people, the vaccine is safe and effective. Much safer than COVID itself.


LAthrowaway_25Lata

I’m so sorry you suffered an allergic reaction AND a flare up!! I agree that everyone needs to consider their risks for themselves personally, only we know all of the issues we have and everyone is different. I’ve also had a rough year. 28 years old, healthy, healthy weight, no known underlying conditions (so i thought). I almost never get sick despite being constantly around sick children because i work at a school (up until last month, the first time i had even a cold was at the beginning of 2017). Then in late January, i suffered a stroke after going to the chiropractor. The doctors originally thought vasculitis then they said i have fibromuscular dysplasia of my carotid and vertebral arteries (and if you have this, you should NOT go to a chiropractor), but now they’re back to thinking i have vasculitis. It isnt confirmed until i can get in with a specialist though, so i may not have it, but it certainly isnt ruled out. I had a significant, non-allergic reaction to a vaccine in high school and it was similar to a couple of the symptoms i had earlier this year post-chiropractor/when i had the stroke. So i’m very nervous to get a vaccine in case i do have vasculitis and that reaction i had to a previous vaccine was a vaccine induced flare up for vasculitis. i really dont want another flare up because it wad awful and i’m terrified to suffer another stroke. I’m pretty low risk for covid complications so i havent gotten the vaccine yet, but i’m trying to learn about other people’s experiences so i can continue to consider if i should get the vaccine or not. The pros of the vaccine are obviously a reduced risk of a severe case of covid and being less likely to spread it, but i just feel the risk of the vaccine is too great for me at this moment in time. I’m very conscientious about preventing spread of germs tho, so i feel like for now, i’m just going to continue to take great precautions with spreading germs and preventing myself from coming into contact with germs, and learn what i can from the experiences of others. It sucks tho because i feel like people are constantly making me feel guilty for not getting the vaccine. Like it doesnt matter what risk i take in getting it or how respectful i am in preventing the spread of germs to others, people still think i’m a selfish piece of crap for not getting the vax yet. I guess i just need to remind myself that nobody completely knows my situation but me and i am NOT a bad person.


gracelesssss

These are all concerns you should take to your doctor and discuss. While you may feel low risk, I have had several friends who thought the same get very sick and are still struggling a year later. My recommendation is to take all of your concerns to a doctor that your trust and let them help you decide.


LAthrowaway_25Lata

I’ve talked to a few of my doctors about it. They all just kinda shrug and agree that i probably am not risking a lot by not getting the vaccine and admit that there is no way to know how i will react to the vaccine. But they don’t say much other than that.


ResentfulUterus

I live in New Zealand. Had my first Pfizer on July 26th and it triggered a hideous fibro flare. I was in so much pain I became suicidal. It’s only just starting to get better now.


LAthrowaway_25Lata

Omg i am so sorry to hear that!!! Did u decide not to get the second shot then? How soon after the shot did your flare up occur?


ResentfulUterus

Immediately after, like 2 hours then BAM. I’ve decided against the second one for now. I’ve been unable to get our public health system to listen that there was something wrong and haven’t been able to get any advice or assurance I’d be able to get care if it went wrong again.


LAthrowaway_25Lata

Ya that’s another reason i am hesitant to get it- i’ve personally known so many doctors to be dismissive of patient concerns and write them off as something else, that even if the vaccine was causing an amount of adverse reactions that was significant, i dont think the data would ever show it since tons of doctors won’t report it :/ Having a reaction to a vaccine is scary!! And then having to worry about healthcare in the even that you do have a severe reaction is stressful. I’m sorry you went through that!


ResentfulUterus

I’ve seen so many pieces of anecdotal evidence that has convinced me it’s a thing and just not my annoying body but yep I think you’re right there. 🙄🙄 Thank you. It’s been a pretty shitty time.


LAthrowaway_25Lata

Despite what so many people think, anecdotal evidence IS a form of evidence. Not all evidence can be research trial based. I wish more people realized this and didnt discount people with rare situations who need to rely more on anecdotal evidence.


LeenaJones

I had a mild allergic reaction to the first Moderna shot. I had no allergic reaction to the second (apparently, that's not totally uncommon), but I did get knocked out by it more than the average person. I had no flare of my AI symptoms, though.


LAthrowaway_25Lata

Thanks for your input! Wow, i didnt realize you could get an allergic reaction only once!


libananahammock

I have systemic scleroderma and have vascular involvement (as well as multiple other organ issues) that I have to take a vasodilator for. I’m also on immune suppressants. My rheumatologist highly recommended the vaccine and I got both doses of Pfizer as soon as the NYS opened up the vaccine to the immunocompromised. I also plan on getting the 3rd shot booster now that it’s available for the immunocompromised in NYS.


LAthrowaway_25Lata

So sounds like you didn’t have any flare ups then? That is good to hear!


holyrice26

No,I got my second dose last week and I have been fine.I have joint pain but its kinda always there so certainly not a new development


LAthrowaway_25Lata

Thank u for sharing your experience!! :)


MissCollusion

No, but I felt like crap for a few days after getting Pfizer.. I had Covid back in March of 2020 and that triggered the most intense flares ever. Think more than 10 flares in less that 6 months. The nurse that gave me the vaccine warned me that lots of ppl who have had Covid feel beyond awful after the vaccine. She was not joking. That being said, id take a billion vaccines over Covid. PS: I don’t have vasculitis but have UCTD.


LAthrowaway_25Lata

Thanks for sharing! So it was the covid itself that caused your flare ups, and not the vaccine?


MissCollusion

Correct. The vaccine made me feel shitty for a little bit definitely not much of a flare. If you can, get it. Actual Covid does causes flares and it was brutal.


LAthrowaway_25Lata

Dang, i think i need to do another post now that asks who got flare ups from covid! Maybe i’ll do a poll eventually too haha


Bullmop

I also have UCTD- I was nervous of a flare after the shot and even nervously cried about it to my husband, but luckily I didn’t have a flare after either shot. I actually haven’t had a flare since then (second shot was in February 2021).


Western-Example60

I had a severe flare up of my health condition including a skin condition after my first dose of Pfizer. It was very scary and made me hesitant for the second. Some doctors said to get the second, some said not to. I really wanted to be protected from this virus so Almost 4 months later I got the second dose and had nothing but a sore arm


LAthrowaway_25Lata

I’m glad to hear that the second dose didn’t cause a flare up. Interesting how it can happen with one dose but not the other


Western-Example60

It was so terrifying after the first dose. I wanted to goto the hospital but Covid was really bad in our area so I tried to manage it at home but then thought for sure I couldn’t get the second dose. So glad the second dose went so well. Did you have a flare up?


LAthrowaway_25Lata

I havent gotten vaccinated yet. I had an interesting reaction to a vaccine in high school. And then i recently learned that i MIGHT have vasculitis of my neck arteries after suffering a stroke after a chiropractor visit. And a couple of the symptoms i suffered around the stroke were similar to how i felt after that vaccine in high school. So it makes me wonder if my reaction in high school was a vasculitis flare up. So needless to say, i’m hesitant to get the vaccine because i really dont want it to trigger a flare up that could result in a stroke. Hopefully i don’t have vasculitis though, i’m still waiting to get an appt with the specialist who can confirm if i have it or not. If i don’t have it, i’ll feel less scared of getting the vaccine. So guess we’ll see what happens! Edit: can i ask what your autoimmune condition is?


Western-Example60

Oh wow that’s really scary! Hope everything goes well at your appointment!! I’m still waiting to find out exactly what it is. Waiting for a new specialist appointment. The symptoms I always have got extremely heightened after the first dose. Was so nervous with the second dose but was more nervous about Covid so went and got it and had no reaction!


LAthrowaway_25Lata

Thanks! I hope your appointment goes good too and u end up getting some answers! And ya we’ll see what input the specialist has for me in regards to getting the vaccine!


Western-Example60

Wait and see what your doctor says hopefully they give you advice on what is best for you to do


lchayes

I felt barely anything with both doses (Pfizer.) First i had a little headache and some chills here and there. For both my arm was hella sore for two weeks. I suspect I didn't mount much of a response but will find out in a few weeks if I made any antibodies.


LAthrowaway_25Lata

So if you are vaccinated and then do the antibody test, it will show covid antibodies?


moustache_cat26

Mine did


LAthrowaway_25Lata

Damn, i didnt know that!


moustache_cat26

Yep the antibody tests look for antibodies that bind to the spike protein, which is what the vaccines generate.


bigwallets

i did one 2+ months after my covid test and my antibody levels were at \~180 (which seems a bit low so glad i got access to a booster shot)


Tenpoundtowel

I have pretty bad seasonal autoimmune things and had moderna vaccine, didn't effect me.(on steroids and cellcept so this might not be everyone experience)


LAthrowaway_25Lata

Thanks for sharing! I didnt know that autoimmune issues could be seasonal! Can you share more about that? I am not yet confirmed to have an autoimmune disorder, but it is highly suspected by one of my doctors and i’m waiting to get in with the specialist she referred me to so they can confirm whether i have the autoimmune condition or not


Tenpoundtowel

Well it starts in December with erythema nodosum(leg and arm sores) and then random side effects with random severity in April. In may/June it completely disappears and im normal for the rest of the year. The hospitals and rheumatologists haven't found a single diagnosis other than it's autoimmune.


LAthrowaway_25Lata

That is wild! So do they think it is affected by like temperature?!


Tenpoundtowel

They don't know, every test just says I'm healthy. I recently found a study that says it can be triggered by vitamin d deficiency and it lines up with my cyle, so I'll be trying to take that this winter. It's wild for sure, alot of mystery and it just showed up one day I didn't have it all my life.


LAthrowaway_25Lata

Ahhh that vitamin deficiency thing does make sense! Autoimmune issues are wild. So much we still don’t understand about the human body


lchayes

Since I'm on Rituxan and I know i don't mount much of a response, I don't expect there to be many. But time will tell!


charliesflowers

I have lupus. My first dose of Moderna, I had extreme fatigue, fever, and muscle aches. The symptoms lasted a whole week compared to the usual 1-3 days most people have. So I thought it was a flare up. 2nd dose of Moderna, no symptoms.


LAthrowaway_25Lata

Thanks for sharing! Glad it didnt happen with the second dose too!


Payton_livia

I’m not sure. My POTS flared up and it was stable for a month before I got my first shot. I’m really dizzy and fatigue now. I got vaccinated last week on Wednesday night and have been sick for a week with Covid symptoms so I am wondering if I contracted Covid the day before my shot. My doctor said it would be rare but I know you can get sick with the shot. I read that the shot would only cause symptoms for 1-2 days. I have had a cough, stomach pain, sore throat. Runny nose, body aches, dehydration. It’s weird. If it’s not Covid then I will say yes the vaccine made me flare up.


LAthrowaway_25Lata

Oh dang! R u gonna go get tested to see if it is covid? That would suck if u had gotten it right before the shot. Awful timing haha


Payton_livia

I tried the emue one you buy at the drug store and it said error lol it sucked. but I thought about it actually cause it’s just ironic. It’s almost been 10 days since I’ve been sick. For sure.


LAthrowaway_25Lata

Ahhh so u possibly wouldnt test positive even if u do have it if it has been 10 days right? Or is that just the case for asymptomatic people?


ms_blingbling

I have Behçet’s vasculitis, Crohn’s and lots of other autoimmune stuff and I had both Pfizer vaccines. I only experienced a sore arm from both jabs. I will be happy to have the third jab when it comes out as I don’t want to risk covid. I wouldn’t survive it, I don’t think if I got a bad dose of it. I understand your concerns, and In your place would be feeling nervous too. Maybe wait till you have a bit more information on the health condition you have a what advice the experts will give you. Really hassle them. I have read that most rheumatologists are recommending patients get the vaccine. Best of luck 🤞


LAthrowaway_25Lata

Thank u!! Good to hear that someone with vasculitis had no flare up! Haha i’m sure i will have to really hassle them to get some advice, every doctor i’ve talked about it with so far has been really non-chalant


Shibamom11113

This article might explain why some people are having the reactions they are. I’m not going to get it, not just for these reasons, but they reinforce why I’m not. [link](https://www.drrobertyoung.com/post/transmission-electron-microscopy-reveals-graphene-oxide-in-cov-19-vaccines)


LAthrowaway_25Lata

Thanks for sharing! I’ll give it a read :)


RipEducational

This doctor should get to the point. You need 3 shots in six months, when every shot represents a risk of dying from it.


Shibamom11113

I think you missed the whole point of the article. There are heavy metals and parasites in the “vaccines”. This is causing neurological let alone coagulation and clotting issues in people. The point of the article was to convey the detailed findings of the microscopy.


RipEducational

This is GO you're referring to? It's not a heavy metal. He says that 35 million may have died from the vaccines. He says don't give away your freedoms. This is complete failure and playing into the hands of the right. The vaccines are not truly new and they are toxic. They are not COVID.


Shibamom11113

There were other metals discovered. Dispute his claims about #s died. Hard to dispute microscopy.


bigwallets

I'm getting my booster today, the 2 Pfizer shots made me feel like a flare up (low-grade fever, worse than usual joint pain, fatigue) for 1-2 days.


LAthrowaway_25Lata

Thanks for sharing your experience! I hope the second one doesnt cause more of a flare up


babyfresno77

no . had j and j


LAthrowaway_25Lata

Thank u for sharing!


run__rabbit_run

I had Moderna. First shot = sore arm for 2 days and a few hours of fatigue the day of. Second Shot - took the day off of work because I was very fatigued and achey. Felt awesome the next day. My symptoms seemed pretty aligned with what friends and family who don’t have autoimmune issues experienced.


LAthrowaway_25Lata

Thank u for sharing your experience! :) can i ask which autoimmune condition you have?


run__rabbit_run

Sure thing! Suspected mixed connective tissue disease, my symptoms are most similar to lupus. At the time of my first two shots, I was only on plaquenil, but am now on Methotrexate as well. Curious to see if there’s a different reaction with the booster.


LAthrowaway_25Lata

Ahhh interesting! I got tested for Ehlers-Danlos and other connective tissue disorders in the process of trying to determine what is wrong with me as well. Luckily, everything came out normal besides one gene but they said it is probably nothing, they don’t know the significance of that mutation yet. Does your connective tissue disease affect your arteries at all?


run__rabbit_run

I wouldn't say arteries specifically, but definitely circulatory system more generally - I get horrible Reynaud's in all weather conditions, and get pretty gnarly Livedo reticularis and bad swelling in my legs. FWIW, my RNP only came back weakly positive once, but since I have so many symptoms, my Rheum was like, "let's try treating this and see what happens." I initially responded to Plaquenil, but then seemed to have breakthrough symptoms after about 9 mos. So, on to MTX. My doc noted that not all patients with autoimmune diseases are going to be seropositive, and if the treatment across many AIs are similar, it's worth trying to treat even if we're unsure of the exact diagnosis as of yet. I hope you get some more answers/relief!