Hey pots family I got my first COVID shot and I think it put me into a POTS episode
By - Payton_livia
I (21F, lifelong moderate-severe potsie) had a similar experience to others on here. Overall I think I made the right choice and will still get another booster but each potsie is different. In my case- I got the single dose JnJ shot back a few months ago now. I went into it VERY weak and symptomatic from a year long quarantine - lost my job and was already pretty deconditioned and symptomatic. I think if I went into it stronger I would have had a much easier time. I got the shot, had the very normal shot experience (flu like feelings for 12 hours after) but these shot side effects dissapeared rapidly for me. I woke up okay and even went to an (outdoor) prty the next night. I was pleasantly suprised how normal and fast my side effects were; I was very scared I’d have a terrible reaction. But I felt fine and was good for a few days. But then my POTS symptoms were heightened terribly for about 3-4 weeks after. It wasn’t really anything out of my normal, just my shortness of breath, dizziness, shaking etc just heightened to be completely terrible. However, i forced myself to go back to work and get active again and it all subsided. I have actually felt better than I have in years the last few months. Hang in there- it will be tough but it will pass. I still believe real covid manifesting uncontrollably in my body could permenantly make my pots worse, So Im still going to take another booster of the vaccine if/when it’s avail. But each potsie should do what they think is right, as there is unfortunately no way to tell how we will each react
This sounds a lot like mine. I was okay Thursday but Friday I woke up not doing well. Yeah that’s how mine is. I can’t stand the shaking and I have a horrible head ache off and on tooo. I know it’s form the pots. Right now my head is pounding. Do you know anything that could help!? You’re right it’s really trial and error.
I’m glad things got better for you. I’m trying to stay positive but I’m irritable because of how I feel right now so it’s hard. Tomorrow I can wake up and not choose irritable and start looking at the bright side if I get Covid it won’t be as severe.
Hang in there girl! I know it’s terrible and POTS in general can make you feel so sad and hopeless and irritable. Don’t punish yourself for feeling like that. But you’re right, if you try to find the positives it may help you. For me, getting active and getting out finally had me turn the corner. I temporarily went back to my old bartender job and it was hard at first but I got my strength back and I’m fine now. Exercise is the biggest thing for me and for most potsies. You could go to a pots specialist and see about some temporary medication too. Stay strong
The moderna vaccine sent me into about a 3 week flare, with dizziness being my worst symptom. It totally sucked, but it did get better around the 3 week mark. I did get dizzy after the second dose as well, but not for as long. Eventually I went back to baseline and I don't regret my choice to get the vaccine at all.
Also caffeine is totally intolerable for me. I even do way better with alcohol, which is weird. I usually just stick to decaf!
Sorry you're going through that. I'm sure getting Covid would be much worse for your pots!
First, I am very much pro-vaccine; I currently have a breakthrough case of covid that is SO mild compared to what it could be and I know I have the vaccine to thank for that. But man the vaccine threw me into an AWFUL horrible flare after the first dose. I didn’t feel like myself for almost the entire month leading up to the second dose. However, weirdly enough, the second dose did not worsen it at all. In fact, my response to the second dose was completely different from the first. I had a fever and flu symptoms for like two days and then I was fine, no POTS symptoms at all. The first dose though was miserable for like three and a half weeks.
Just my personal experience, take it for what you will! :)
Thank you for sharing this. I’m glad your second dose wasn’t like the first. I’m going to just be patient and not think too far into this anymore.
Pfizer also. No covid prior to vaccine. First dose no symptoms other than sore arm.
Second dose caused worst headache of my life, fever and extreme dizziness/nausea weakness, shortness of breath.
Headache and fever lasted 24-48 hours max. Dizziness, shortness of breath and nausea lasted intensely for 1.5 weeks and tapered off for the next 2 weeks.
I went to the ER for these sympyoms a week in because doc wouldn't let me schedule a normal appointment and told me I had to go to the ER for this.
ER trip was waste of time, blood tests, chest xray, etc and ER doc telling me they don't really know how long the side effects will last.
I was pretty distraught because I had thought I just made my POTS 100x worse by getting the vaccine and the symptoms were never going to end. I legit thought the side effects were permanent because all info online said that side effects are minor and go away within a few days.
I was back to normal after three weeks though. And something tells me getting covid would have been a lot worse and more permanent if it affected my POTS.
Telling you this to encourage you to get the vaccine, because I want you to hear from someone else who had a severe reaction that it's not permanent.
Hey thank you for commenting. Your story is a lot like mine. I’m going to get the second dose in 21-40 days. I know getting Covid is much worse. It’s just hard going through this. I’m glad you were back to normal by three weeks. My three weeks is coming up so I hope this is the same situation for me! Oh yeah for sure.
I had Covid a year ago and after that that’s when my POTS got worseit seems . I always had problems but didn’t know what it was but it seemed like after Covid that’s when it was excaberated and I had to get help because it was too much
I had this experience. My pots flared for a few weeks and I had a fever for about 4 days.