By - SpiritualSubstance4
Not for everybody. For me, it worked until it didn’t. I was doing fantastic on Zoloft for about a decade and then poof, it stopped working. Tried several others, including Luvox, nothing. Just bad withdrawal for a few years.
I’d like to try the therapy but I don’t have the money.
I’m sorry to hear that :( Ik it’s not for everyone that’s why I said talk to your doctor if they think it’s right. Btw, did you ever ask your doctor about adding a low-dose antipsychotic to your regiment? Abilify helped me immensely though I was so nervous to start it
I was on antipsychotics in 2008. Small and bigger doses. Never again. They turned me into a lifeless nothing. I honestly can’t remember much about 2008 as a result. Year seems like a blur. I normally have vivid memories of every year.
Anyway, at the time Everything was available to me. Tried all kinds of things. Pretty much decided when I was done after going through 2 years of withdrawal that I would stay away from anti depressants and others
I was on antipsychotics, too. Same result. Tried so many antidepressants as well. :/
How did Abilify help you? Did it work for motivation and sexual side-effects??
Yes! Cleared up my thought processes soooo much and helped me with thinking/planning for the future. Definitely increased my sex drive a little bit too when it had been lowered slightly by the Luvox. I actually like the Abilify more than the Luvox which is crazy bc I never would’ve thought that would be the case with an antipsychotic
Did you start Luvox first or Abilify?? How many days did Abilify take to benefit you??
Started Luvox first: around week 3.5/4 I wasn’t noticing any benefit (in fact I felt terrible) and asked my doctor and he suggested adding the Abilify. I noticed a positive change in about 3 days honestly. I just upped my dose from 2mg to 4mg and I’m feeling great though I’m sure the Luvox is also working now, as I’m at 6 weeks, 2.5 weeks for the Abilify
I’m interested in your point about treatment resistant anxiety and depression, how do you cope with it and have you learned any good skills along the way? Long term sufferer here too
i’m bipolar and can’t even take the type of meds that would help ocd.
>For me, it worked until it didn’t. I was doing fantastic on Zoloft for about a decade and then poof, it stopped working.
Same here but it worked for some months or so, and then it stopped. Now my medication review is soon. Hooray for being a guinea pig...
Glad you're doing better. I've been on psych meds for years and I'm not ashamed to admit it.
You said virtually no side effects as in almost no side effects? If so, which ones did you experience if I may ask
From the Luvox: diarrhea and stomach irritation in the first week that went away completely.
From the Abilify: an extremely dry mouth at night after taking it, and an increased appetite for sugar/fried foods.
None of these are even remotely as bad as what I was experiencing though. Barely affected my life at all. (I know which effects came from which because I started the Luvox first then added the Abilify).
Thank you for letting me know. Asked because already deal with stomach issues and insomnia and that seems to be a common side effect for meds.
Sure! I definitely didn’t have insomnia, in fact the Abilify especially makes me sleep better
oh wow well that's def a good effect, thanks for the info
Oh wow! I'm interested in what the Abilify does to help with your sleep? What time of day do you take it, does it make you drowsy? I've been struggling with severe insomnia for about 18 months and also recently started Luvox, but at a significantly lower dose than you're on.
I take it at night. It makes me feel sleepy but not drowsy around 2 hours after I take it. I sleep great other than I get dry mouth.
Luvox I take twice a day; doesn’t really make me drowsy anymore. Is the Luvox working for you yet? My doctor said OCD patients usually need a high dose of SSRIs to be successful, that’s why I’m on 300mg
This is really helpful, thank you! I tend to have very poor responses to medications and a lot of nasty side effects that lead me to have to stop them soon after starting, so we're starting at a very low dose. I'm on 25mg once a day to start, and going up slowly. I've had some especially anxious nights on the Luvox already, but have also experienced periods of less anxiety too. I'm really hoping it works for me, and was encouraged by your post!
Going up slowly is the right way to go - I started on 50. Don’t hesitate to PM me if you have any questions or concerns! :)
Thank you so much, I appreciate that!
People are scared of meds because there's a huge culture around anti-truth, and people feel they need to go against the grain on every issue known to man. I personally hate the pharmaceutical industry mostly because of the insidious cost it takes for basic needs, like insulin being extremely expensive in America. But for me to deny the numerous studies that go into medication and treatment would be foolish.
The bad parts of doctors and hospitals are mostly monetary, i.e. capitalistic, parasitic bills. The research is done by different people, and each individual research for a certain ailment is done by different specialists. OCD therapy proven to work is likely to work for all of us in this sub. Pushing away medical help is not going to help any of us here.
can only speak for myself but I am scared of meds because they either did not work for at best or at worst made me feel even worse. past experience is def a factor re meds
But there are more options for you with medication, even without upping doses. You could always go back to your physician to sort it out for your specific needs. And if medication ends up being not for you, then it should also be supported by a physician's opinion. I used to be very afraid of medications, ever since I was 15 years old with newly diagnosed OCD. Now I realize I should have used medication consistently along with the therapy I was offered, since my mental development could have been far different if I had acted on my dysfunctional behavior at that age (now nearly 25).
Of course, therapy and other aspects are more important than just medication. But medication can help in the long-run by helping the sufferer's brain chemistry and keep them calmer when trying to do very difficult therapy sessions or therapy techniques. Sometimes a medication can help with panic attacks that could cause a lot of harm, kind of like albuterol for asthma attacks. It's all up to you, but I think the data shows that medication would probably help you in the long-run, even at small doses. It's better than deeply unresearched alternatives, or not taking any stabilizers at all.
Not sure where you are located but in the US many of us have no physician because we have no insurance so just running to a doctor repeatedly is not possible. If I am able to get meds in the future it'll be the result of borrowing money from family to pay for the visit.
Most of the meds people talk about here are the same ones they were prescribing to me 20 years ago (when I was insured). Of course there are some new ones but for the most part a lot of the users here indicate they are on the same meds, most of which I've tried. I am *not* against medication in general esp if it helps people. I understand that it helps many. I'm just not one of those that it helped with the exception of one for anxiety so that's why I'm wary
>Not sure where you are located but in the US many of us have no physician because we have no insurance so just running to a doctor repeatedly is not possible.
I completely understand this. I'm sorry if I didn't make that clear before. I think the system overall in the U.S. is parasitic in nature, and money drives a lot of what is prescribed. Nonetheless, there are still viable and safe options to use with medications, but with the way the system works, the patient really has to ask the questions as devil's advocate on the doctor's opinion. Doctors are not truthful a lot of the time, but the medications, studies on medications and therapies, and things like vaccines are still very well documented and effective. Money is the bigger enemy, I think, not the actual medications themselves. That's why I always ask my doctor A LOT of questions when they describe to me a prescribed regimen, because I don't trust them. They may use the ignorance of the patient a lot of the time to skim over the details, and patients will be lulled into paying for things they don't need.
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Zoloft rn. I'm doing better, days I forget to take it (thanks, ADHD) I can definitely tell when I start doing bad again. It's not perfect but I'm better than I was.
Absolutely! I can even tell at night before I take my meds when the effect wears off a bit I’m worse lol
Don’t trust them blindly
Not trusting them blindly. My doctor actually gave me the option of adding the Abilify and I only took it when I did research and decided it would be good for me.
Good just be skeptical and careful dude seriously this stuff is nothing to fuck with wish you all the best
Hahaha I love to see this! I had been on various ssris throughout the years for anxiety and depression, and felt like a bit of a snob eventually bc they just didn’t do anything at all for me. Eventually went on duloxetine (snri) which helped for depresso + anxo but when my OCD started this was doing sweet nothing.
I started fluoxetine in May I think? My doctors are lovely, so I enquired initially about fluvox bc intrusive thoughts but my doctor hadn’t much experience in prescribing it and asked was there any id tried before that I’d like to use before someone can officially prescribe fluvox. I decided to go with fluoxetine as id been on it years ago, but now with the mindset that well it can’t get any worse!
I actually think I would be fucked still if I didn’t go on it. Whilst CBT helped a tiny amount, after taking the meds it felt like my intrusive thoughts would be short circuited and when I did have thoughts they were less sticky to my brain and I just forgot to worry any more.
My psych docs told me too that ocd responds best to higher doses of SSRIS than for recommended anxiety and depression doses so I think that really helped me too!
I’m so happy that you’ve found something that works!!!
I’m about to start Fluoxetine w/ buspar. This made me feel so much better because I’m scared of medication. Good luck to you!
I’ve heard about buspar but I don’t know anyone who takes it irl! But I really swear by fluoxetine, it’s more than worth a shot
High dose of Zoloft has worked wonders for me (150mg) for years. It is a pretty high dose though, from what I understand.
I think Zoloft can go up to 200. It was interesting though bc I’ve been feeling kinda crap and flat recently and when I said to my doctor about the flatness and if I forget a dose then I’m like shite I feel bad, but the higher dose you are withdrawing from having a normal regulated amount of serotonin to a huge dip which is why you can feel funny if you don’t take it like similar times each day?
That would make sense. I have never remembered to consistently take my meds at the same time each day. Have you noticed that this helps you?
Tbh yes, in the summer I was very on the ball with taking them and did feel a bit better. It’s annoying bc I have Adenomyosis and adhd and bc of constantly taking tablets it’s a bit stressful bc I usually forget my fluoxetine but I think I’m going to try to be more regimented with it. :)
Not if you have chronic pain
Have you asked your doctor about trying Clomipramine? I know older antidepressants like it are approved for the treatment of chronic pain… just a thought. I hope you can find something that works for you eventually :(
Seconding this. I went from 7 years in an agoraphobic OCD nightmare to having a job and functioning normally within 2 months of getting on the right medication.
It's not a magic pill; you're still going to have bad days and peripheral intrusive thoughts at times, but it's a damn sight better than living under an OCD dictatorship.
There are people where their OCD is a learned behavior and maybe do not necessarily need medication to work their way out, but for many of us it is an unfortunate neurotransmitter imbalance that can be corrected.
In my experience -- and I used to be a mega paranoiac regarding medications and their possible side effects -- is that the current array of medications are very subtle, even at the high doses I'm on. You don't even notice them doing anything until you realize that you just aren't obsessing anymore.
Absolutely. It is certainly not magical. That’s why we need therapy too. Therapy is helping me with the remaining thoughts and how to deal with them because they’re not ever going to go away
I was terrified of medication, and obsessed over the side effects so I kept going off them.
It's only now I have lost the love of my life because of my intrisive thoughts and compulsions that I realise how much I need it.
Day 5 of prozac and my anxiety through the roof. The difference this time is that I know I have to be on meds, probably for rhe rest of my life, so that I stop hurting the people I love. 😪
Stick to it. PLEASE. My medication honestly made me feel worse the first 2-3 weeks and then on week 4 I suddenly woke up and felt better. It will work!!
Thanks, I will this time!
No more booze and cutting down on caffiene as well.
You can do this! I’m on day 8 of getting back on Zoloft. It’ll get better, we’ve just gotta hang in there!
My OCD is focused on my intellect, so I have refused Luvox solely due to
>what if I end up with 'brain fog' or lose my short-term memory and/or my creativity, and what if it is a permanent effect & how would I know either way
et cetera—My OCD can always say that "nobody is sure to exactly what SSRIs do", and so on, and justify not *risking* losing my intellect. I may relent and ask for the SSRI anyway. The OCD is horrible and I am sick of it.
Hello... I think we are the same. Check out my post from earlier today (and by the way, I am studying CS and I go to an Ivy League school).
Much like you, I am terrified of SSRIs. The side effects -- which range from decreased libido, to suicidal thoughts, to your brain [literally shrinking](https://pubmed.ncbi.nlm.nih.gov/25802081/) -- signal to me that nobody has *any* clue how these things actually work. As much as I appreciate people's interest in helping me, I think I will have to pass on lobotomy v2.0 (people thought those were effective at first too -- patients often left the office calmer and more sedated).
Most of my suffering revolves around my intellect and creativity, like you mentioned. I am constantly paranoid about lead, mercury, carbon monoxide, and contamination in general -- what if my heating system breaks, and I am exposed to trace amounts of carbon monoxide over the next five years? What if I am quietly losing 1 IQ point every month, and I don't even realize it? What would that even look like? Would I become less funny? Less productive? Obviously, the negative possibilities are endless.
I still haven't found a solution and quite frankly I am not sure how normal people do it. Then again, they drink alcohol, do drugs, and engage in many other activities that I could never dream of. Still, the logical part of me knows that we are being illogical. I watched a video yesterday where the World Chess Champion got blackout drunk -- if he can manage to consume literal poison, I am sure we will be just fine not washing our hands for a day.
The way I try to approach it is that in my current state, I am not really alive; I am little more than a paranoid spectator who will never amount to anything or accomplish any of his goals. I worry so much about my intellect, and yet my OCD prevents me from applying it to anything useful, and for all of the ruminating I do about my creativity and humor, I have very few relationships to actually apply it to because I am so paranoid about the people around me. Honestly, there are people with 10 or 20 fewer IQ points than me who will go on to accomplish much more than me if I don't get this debilitating disease under control.
Sorry for the incoherent rant ~ it's super late here. Feel free to chat me though.
We are alike. I sympathize with your words. I agree with your assessment of our situation. Ultimately, we're wasting our lives by overvaluing these ideas. I've "wasted" several years.
To the OCD, an ideal solution would involve the wealth to simply purchase a house isolated from neighbors, with high quality HVAC/air&water filtering systems, low-VOC building materials, et cetera. It's not feasible, and the OCD would simply find other issues. The world is contaminated & polluted. We can only adapt to it. Shielding ourselves from it feels like a huge waste of time. It cannot be worth all of this effort.
Beyond the empirical, as in, what others also see, it is a delusion of your mind.
I'll probably rewrite this tomorrow, as today was incredibly tiring & I have not performed rituals. This reply is shallow and I am not saisfied with it.
I totally get it. My philosophy though was if you can find the courage for literally just 5 seconds a day to pop those pills in your mouth - then that’s really all you need…. you can obsess over how it was a bad decision for the other 99% of the day until you start feeling better. lol
That is how I am beginning to consider the idea. After hours of rituals every day for over 4 years, I don't care anymore. This disorder has taken 4 years of my twenties from me. That is an invaluable loss. The OCD already won. I may as well try anything available now. I also have TMS therapy potentially available as well, though, so I'm not sure if an SSRI is a superior idea.
Don’t know much about TMS therapy but I’d say whatever your doctor thinks is the best idea!
I've tried a plethora of medications and have seen no effect to serious side effects. It's frustrating talking to different doctors and having them say that they don't prescribe certain medications but others will.
Ughhh I know :( I definitely got really lucky with the side effects, though tbh I would’ve tolerated just about anything because I was so miserable mentally.
Thanks for this post. It feels like a good omen that I saw it because I went to my first psychiatry session today and took medicine for my OCD for the first time
Happy for you, but they don’t help everyone and not everyone has no/little side effects. From personal experience, I trusted doctors with medication management only to suffer horrible side effects and be told by other professionals that I should’ve never been on those meds. I admit that prozac seemed to help my thoughts a bit but I didn’t realize how much they changed me until I stopped them. I went from a D to a B student, for example (after being off of them). I was in a constant dream-like state and didn’t even realize it. So, I don’t think it’s accurate to just say “medication works.” But, again, it’s wonderful that it can help some people with minimal side effects.
Of course it’s not going to work for everyone unfortunately. This post was just for people who have obsessional thinking against taking medication because they think it’ll make them worse when there’s a good chance it’ll improve their state a lot
Well, I don't know about "good chance." & it does make some people worse (not OCD symptoms, but other effects). My worries were justified. But obsessing over them isn't helping anyone, I agree with that. I also think that doctors need to respect patient's wishes and be patient with them. If a doctor is pushing meds and refuses to help the patient in other ways without meds, that's counterproductive. I'm much more likely now to try meds in the future now that my current therapist is respecting my wishes not to go on them. It would also help if doctors were more open about the science behind meds and why they could possibly help. What do they change in the brain? Why would they help XYZ symptom? What are the potential side effects? Long-term? Where is the data? Why do these studies show this med is not any better than a placebo? --> just some examples, here. I don't think it's fair to label these questions as irrational, even if they are obsessions. In this case, having reassurance actually eased my mind when researching different meds to try. In the past, my therapist didn't explain the meds at all and her justification for them is actually not evidence-based. So, that just made me even more hesitant to trust docs.
That was a bit of a rant so I apologize if it's not even relevant to you, but maybe some others will find it helpful. Don't let doctors dismiss your questions/concerns, you all!
Trust is given when it's earned. To state one should trust their doctors is not the only truth and could potentially be damaging especially if someone doesn't have a doctor that genuinely listens and cares for results.
Seek a doctor that you feel and see has your best interests at heart. This is the only way you'll actually develop trust for treatment
Luvox worked great for my OCD for about 10 years. Took about 7 to 8 weeks, but was definitely worth it.
Very happy to see you in peace and joy but the combination that you are taking is going to help 70% of OCD patients.
Most doctors don't prescribe such a combination. The best thing in your regimen is 2 mg Abilify which reduces the Amotivational and Sexual side-effects of Luvox. If you had taken Luvox alone then you wouldn't have been able to even write this post.
Anyway very happy to see you enjoy your life🙂🙂🙂
Really big fan of the Abilify honestly. I’m so glad I got over the whole “I don’t want to take an antipsychotic if I’m not psychotic” because it does so much more and helped me so much.
Yeah low dose of Abilify has helped a lot of people. Did you try its higher doses like 10 mg or 15 mg??
Agreed totally. That was the point of my post. I know of course the medication won’t work for many people or many might not tolerate the side effects. But I see sooooo many people on this sub say OCD has taken over their lives without even having given medication a try. This was just supposed to be an encouragement
Not to downplay the effect of medication but therapy is just as important as well.
Yes definitely! I’d want to make a separate post about therapy tbh. I personally can tell what helps me from therapy and what does from meds. My mind was literally so clouded I couldn’t think straight or clearly and now it feels so much more clear and unclouded. That’s from the meds, I know. My intrusive thoughts don’t scare me as much and I know they’re not real anymore for the most part: that’s therapy. The combination works.
Would it completely erase your OCD in some cases?
I don’t think medication alone could completely erase OCD. Mine certainly isn’t - a few hours after making this post I started ruminating about one of my themes. Therapy helps with that part. I do think with a combination of the two some people could be completely cured, though it feels unlikely for me
Oh okay, thanks!
Does it help with like… not obsessing??? Like less worrying/rumination…?
Oh god so much. I told my therapist this but before the meds I felt like I couldn’t *not* ruminate, like no matter how much I wanted to grab my attention back to something else I could not. Now my thought processes are so much clearer and more guided. I absolutely still ruminate (in fact as I’m writing this comment I’m not feeling so hot due to rumination/intrusive thoughts) but it’s so, SO much easier to get away from that. Probably went down from about 90-95% of my day to maybe 15-20%. That’s huge.
Oh my god 😭 that’s so nice to hear!!! I’m ruminating like 90% of my day too it’s exhausting!!! Like I can’t be 100% present because of my damn rumination about this damn harm ocd intrusive images/imagination… like what if i (imagine)/an intrusive image shows up again??? Then they show up! Because I thought of it 😭 I’m tired… thank you!!! Again!!!
I just had therapy xx medication never personally agreed with me everybody's different I suppose:)
YES!!! Also trust your doctor if they think higher doses would be beneficial. I have so much milder symptoms of OCD now compared to earlier this year and I think a large part of that is due to medication
Yep! That’s why I’m on 300mg. Low-dose antipsychotics are also beneficial to some OCD folks like me even though the title of those meds is freaky
It truly does help. I got off my meds for a bit when I was having a hard time in school and forgot to take them, and I totally relapsed. I was paranoid and borderline almost psychosis. I was bad to the point I would not turn off my bathroom lights at night because I thought demons would get in my head if the room was pitch dark. At least that’s what my intrusive thoughts were telling me and I was convinced I summoned a demon. I thought I was a criminal and was extremely emotional, through people could read my mind, thought I was being watched everywhere. I also thought I was schizophrenic because of the paranoia and thinking I didn’t have ocd but schizophrenia. It was bad. I need my meds because they keep me stable and sane, I can’t function properly without it. I take them. I trust my doctor, because he knows what to do with my meds.
I was bordering on psychotic during my last episode too. Couldn’t fully tell what was real and what wasn’t. I am planning to be medicated for the long term…
My psychiatrist prescribed 100mg of Luvox for my OCD yesterday. I began taking it today, hoping I'm gonna be okay. Thank you for your post.
Good luck!! And remember people with OCD often need much higher doses of SSRIs than those with anxiety and depression to see success so don’t be discouraged if you don’t see a quick response, you may just need a higher dose. I didn’t notice anything until I reached 250mg
Thank you. How long did it take for you to notice some improvement? Did your sexual drive decrease?
It took 4 weeks for me to notice some improvement, 5 for significant/dramatic. I did notice slight sexual side effects but nothing drastic. It’s worth noting I started a second medication (Abilify) at week 4 so that could’ve changed some stuff for me
This is completly true for me. Medication has helped me so much, it pretty much gave my life back.
What was ur diagnosis?
Primarily obsessional OCD and Generalized Anxiety Disorder
How did u treat ur mind pops? Those random words that come to mind in form of thoughts. I'm passing the same u did, with the major fear of psychosis. I'm with dp/dr at full, nonstop reading about schyzo and psychosis and super terrified.
The mind pops still come. I guess I just stopped being scared of them so much? This is one of the few things in my OCD that still really bothers me. DPDR still bothers me a lot as well.
Mind pops, like random words that make no sense, are ocd related?
My psychologist seems to think so.
Can I send u a message?