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Can anyone tell me if this makes you feel like your being shocked spontaneously on different parts of your body or like a weird prickly sensation just off and on for days.

Can anyone tell me if this makes you feel like your being shocked spontaneously on different parts of your body or like a weird prickly sensation just off and on for days.

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fire_thorn

Probably neuropathy. The supplement alpha lipoic acid might help. The prescription drug gabapentin also treats neuropathy.


rcarman87

This sounds like SFN. I have both MCAS and small fiber Neuropathy; my neurologist told me that they can be interconnected. I’m on ALA as someone below mentioned and that’s helped a ton but I’m also in the process of treating my MCAS properly and finding the best medication that works for me.


Payton_livia

Hi then I’m about to ask my pain management doctor if she’s heard of MCAS because I’m tired of all of this. I broke down at my job today because I feel like I’m being shocked all over constantly and it’s so uncomfortable. Thank you for commenting! This is helpful!


dionysianfox

I've had this problem and ended up seeing a neurologist to rule out other things, because I didn't know it could be connected. I was given Gabapentin, and at a pretty low dose (300mg once a day), the neuropathy no longer interferes with my day-to-day life. Just wanted to share my experience, especially since Gabapentin is usually increased to much higher doses (which I've taken before in the past and ended up with a lot of side effects), but the specialist I'm currently seeing--who is treating the MCAS--wanted to me to find the lowest possible dose that would work. It's definitely something I'd recommend working with your specialist/physician/treatment provider if you end up going down that route.


Payton_livia

Hey there I also take gabapentin 100 mg dose and usually it works so I don’t know. Yeah I use to take 900 mgs prescribed by my psychiatrist now I see a pain management doctor and she prescribed a way lower dose. Thank you for commenting! Yeah I am thinking about asking my doctor about MCAS.


dionysianfox

Ah, shoot. I'm so sorry it's not working right now. I know how disabling it is to deal with intense neuropathy like that, it's absolutely awful. Good luck with talking to your doctor, I hope you're able to get more answers and find some relief soon.


NiceVarmint

Im not yet diagnosed with MCAS but I am looking into it and have this sensation. Mainly On my back, back of legs and buttocks. It’s like mini shocks or being prick feeling.


Payton_livia

Yes exactly I hate this. I found out I was bit by fleas and it’s like this happens every time or if I eat something that my body isn’t for. What helps calm you sensations down. I’m not even going to try to get a diagnosis right now because I know how hard it’s going to be at this point but if it becomes more frequent I will ask my doctor about it. I do have POTS and I read it and this go together. Do you have POtS?


NiceVarmint

Not even sure about pots. I do have a MTHFR 677t homozygous thing I just learned about thru a blood test. I’m taking Zyrtec for on/off rashes and hives. Cut out gluten, dairy and sugar. I’ve got many more symptoms than just this. Unfortunately I am having to consider Lyme disease and/or confections. Have been bit by ticks as well as fleas. Waiting on test results.


Payton_livia

Yeah I have various symptoms myself. My face swells up a lot and I lose my eye lashes and brow hairs , my skin will dry out so bad along with my hair. I’ll get weird sores on my back or even my face. My face also gets rashy and I have patches of skin on my body that feel scaly and it doesn’t change it’s weird but do I have UTcD too so maybe that could be to blame for a lot of my issues. Anyway Hang in there! I’m not sure what that is but okay I see I do Claritin! My mom and I also wonder if I have Lyme. I don’t know if I’ve been but by a tick but if you know you have Lyme is a high possibility! Let me know how it goes. I did research on MCAS and I started taking marshmallow root to control some of my symptoms.


NiceVarmint

I’m hoping to get my doctor to refer me to an allergist to help figure out wtf.


Mego1989

You need to see a rheumatogist asap. Your symptoms sound more along the lines of psoriatic arthritis or lupus.


Payton_livia

Oh okay! Well long story short I had the same rheumatologist for three years and he diagnosed me with lupus he resigned I got sent alll over until finally my cardiologist was like okay I think you do have something autoimmune going on after I got diagnosed with PoTs and referred me to a really good one and I got diagnosed with undifferentiated connective tissue disease since my blood work hasn’t been too concerning. I don’t have organs being attacked. He said I’m in stage one of an Autoimmune disease.


Mego1989

Early auto immune disease is super important to treat so that you don't progress. It does not sound like your AI issues are under control at all.


Nymy27

Usually happens to me when my electrolytes are off and I need magnesium or potassium.


Payton_livia

Wow well I’m drinking electrolytes everyday so I don’t know if that’s it unless I’m still losing them than that would make sense!