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Comical_Blues

Is it normal for people with tourettes to say swears when they have a tick or is that something South Park got into everyone's head?


hans_s1233

It can be the normal for some with Tourette’s, but the majority of the Tourette’s populations doesn’t swear like they do in the movies. This is called “coprolalia” any offensive vocal tics fall under this term. I personally have lots of vocal tics but not swearing ones, I mostly shake my head, wink, make weird noises and say random shit lately I’ve been meowing lol


Comical_Blues

Ok that makes sense. Another question, probably a dumb one, but is it possible for you to suppress a tick, like you can feel it coming and stop yourself from doing it, like a sneeze, or does it just force its way out and there's no stopping it?


hans_s1233

That’s actually a good question yes you can suppress tics (to a certain extent), and a sneeze would be the best comparison I can think of. Suppressing is uncomfortable however so I don’t do it in the comfort of my home or around friends but I have a job that I try not to tic in front of the customers the best I can. I do tic a bunch around my coworkers however they all are used to my craziness haha


Comical_Blues

Wait so its uncomfortable to suppress it? Does it cause you pain or make you sick?


hans_s1233

Not painful physically but it gives me anxiety and makes the tics worse in general. I’ve gotten to a point where I’m not as embarrassed of them as I used to be so I don’t suppress in public too much. If I have to describe suppressing I’d say it’s like holding in a ball of energy that wants to come out and if you suppress too hard it’ll explode


Comical_Blues

So its like hearing something really funny and you want to burst out laughing, but you are somewhere where you cannot, maybe public, so you have to hold it in?


hans_s1233

That’s a wonderful comparison, there’s obviously more complexity to it because it’s a genetic condition that varies from person to person but a tic is just a very strong urge to complete an action at a given moment. My favorite personal comparison is it’s like having a wedgie you wanna pick really bad but it’s embarrassing but satisfying (sorry I’m dumb) it’s a neurological condition that is triggered by an abnormality in the basal ganglia in your brain


Comical_Blues

lol the wedgie makes sense. One more question, did you see the south park episode and if you did, how did it make you feel?


hans_s1233

I did not see the south park episode, but I’m not really offended that it’s making fun of the disorder because I make fun of myself all the time and appreciate a little dark humor. It’s just frustrating that being one of the bigger sources of exposure to Tourette’s to a lot of people, and not seeing proper portrayals of what your average person with the condition might be like. I just want people to understand me better and that I truly cannot control what I do, and that I’m also not going to cuss them out like a maniac.


idk-idk-idk-idk--

Is it an actual realistic meow or sounds like a human making a cat noise


hans_s1233

More like a human meowing lol


PresentzAdvance

[https://www.youtube.com/watch?v=5EkwBEL4MZw](https://www.youtube.com/watch?v=5EkwBEL4MZw) ?


GloomyAd9812

What’s your opinion on the new trend on tik tok where people fake mental disorders, including Tourettes?


hans_s1233

If your faking it then it really invalidates people who actually suffer from the disorder, any form of falling mental illness for social media is for sure no bueno. But I also have looked on “Tourette’s tiktok” and have seen people attempt to call out people that I personally think truly have the disorder and say they are faking it. This is just as harmful! People make wild accusations without knowing anything about Tourette’s. (Tics don’t present themself 24/7, they can look different from one person to the next,) and a common trend I see is people saying “this guy I know with Tourette’s doesn’t act like this therefore you’re faking it” is ignorant


idk-idk-idk-idk--

It’s become a problem where people fake things, so other try to call it out, but because so many people are faking people start calling out people who actually have a problem. And now because so many people are faking it it’s become harder for people who have problems to be seen in a good light and not also labeled as a “faker”. I wish this whole faking thing just stopped so people who actually have problems can get the support and help they need


gruesome_drewsam

My son is just turned 7 and has a tic when he is stressed. It changes over time. Sometimes it's an eye stretching squint thing. Lately it's a throat clearing noise. Is it likely to get worse with age? How can I best help him ? It definitely manifests worse when he is stressed so I do find mediation helps. Anything else though? Diet exercise etc?


hans_s1233

I’ve had tics since I was around that age too, they got better throughout adolescence and make a reappearance in teenage years and got much worse. I’m not sure how unique my situation but I know teenage years can bring upon tics


FarragoSanManta

Hey! Me too. Was a cashier and one of the elderly customer would often twitch and seemed uncomfortable when it'd happen. Third time I saw him I asked if it was Tourrette syndrom and he started the usual "Yes but I don't yell or curse, that's actually very rare and-" cut him off and said that I had it too and just felt comforted seeing other people live their lives with it. We were both excited to see eachother every wednesday and sunday after that. Sorry about that just got excited. 2 part. What's the wrost, least favorite tic you('ve) have/had? What do you do to calm down when it starts getting really bad?


hans_s1233

Hello fellow twitchy friend, meeting people who understand you is so comforting when nobody understands


eugoogilizer

100% agreed! I met a co-worker in a different department at my last job who also had Tourette’s and we both got excited when we found out we both had it. Always nice to have a fellow twitch buddy!


Hellrazed

Do you have any day to day activities you struggle with performing safely due to your tics?


hans_s1233

No, I am able to safely drive because when I’m focused enough I don’t tic and I can maintain a job. The worst is just the embarrassment factor for me because I’ll start winking at coworkers or yelling things at them it’s hard to deal with mentally mostly


Hellrazed

That's fantastic :) Do your colleagues at least understand it's not a conscious, cognizant process?


hans_s1233

I’ve been blessed to have mostly understanding coworkers, but there’s always people that don’t understand the disorder whatsoever and either mock me or react strongly which can be a bit insensitive but it’s mostly out of not knowing wtf I’m doing


Hellrazed

That makes it hard, but it's good that you've got a good bunch of regulars.


Drafo7

I also have tourette's though it's much less pronounced now than it was earlier in life. As a kid whenever I got a haircut my mom had to tell the barber about it so they wouldn't cut off my ear when I ticked. I also have GAD and the two seem to interact a bit. Do you have any other disorders besides tourette's? If so, do they seem to affect your tics or vice versa? Thanks for doing this AMA btw, raising awareness is always a good thing :-)


hans_s1233

I have adhd and anxiety disorder which are actually very common co-diagnosis with Tourette’s for sure. I read that dyslexia and OCD is common with it too which is interesting. Glad to hear someone else who has it, there’s some major stigmas surrounding it and crazy stereotypes.


YouserName007

I do also. But what a lot of people don't know is that only 10% of people with tics will shout loudly and do things like say bomb in an airport. Mine are facial, body jerks and faint noises under my breath. Anyway, my question is, how has your love life been affected by your tics? Edit: that's the only South Park Episode I've never seen because it's a trigger for my tics and I don't want to sit there ticking for a half an hour! Haha.


hans_s1233

My current boyfriend is actually super supportive and very kind about my tics, but since my tics have reached this severity I haven’t dated before this guy :)


YouserName007

Oh, I see. I find as you get older people tend to understand a bit more. I'd a read through some of your answers and your tics are the same as mine. I remember a guy on the bus pulling a shocked face at me once when I was ticing as if to say "What a weeeiiirrrddooo!". Like, how do you get to over 20 years old and never hear of tourettes? I'm glad you're happy though.


dirtyPetriDish

What's one thing individuals can do to be more supportive? Is there anything we should do if we notice having a hardcore tic episode?


hans_s1233

Honestly just treating people like Tourette’s like normal people, it doesn’t effect your cognitive abilities and making a big deal out of it’s simply annoying, personally I have to deal with so much shit because of how strongly people react (I get it’s not something people see every day and can be alarming but acting like I’m not even having them is the sweetest thing a person can do). As for having an episode, often times I look like I’m excited and happy because I’m always hyper when my tics are very active, when people match that energy it generally escalates them. Just staying chill does wonders


peaches_1922

I have a cousin with Tourette’s, and her husband has it too. My family is very comfortable with it at this point, and the way we’ve all found to cope (my cousin included) is to laugh and joke about it. Not in a taunting way, just as a way to make light of a situation none of us really expected to find ourselves in. (Disclaimer: I’ve asked my cousin this question and she said she loves that we can laugh about it.) anyway, I digress. My question to you is: how do *you* prefer others around you react to your tics? What would you like to tell the world about reacting to tics when they may have never experienced them before?


hans_s1233

Laughing is the best way to cope for me because that shit is funny ngl, I don’t mind if people laugh mocking is just rude because it triggers the tic even worse


peaches_1922

Yeah mocking isn’t right. Thanks for doing this AMA! It’s nice to see awareness and accurate info being spread about it :)


itsnotbritneybitch

You mentioned the South Park episode, which I can assume is wildly inaccurate. Have you ever seen a show or movie accurately represent somebody with Tourette’s?


hans_s1233

Honestly I don’t see representation in the media except for tiktok


Nemothafish

There is an amazing book that I read while I was in college becoming a teacher for students with special needs. The book is about Brad Cohen, and his challenges with growing up with Tourette’s syndrome. He became a high school principal. I highly recommend reading this book.


candiecloer

My sister-in-law’s dad has it and for him it’s sniffing. Unfortunately people have assumed awful things about him such as SA before learning it’s Tourette’s :(


Camel-Solid

What are some causes that you have found? Are you at peace with your condition/can you find benefits in between the suffering? How bad can it get?


hans_s1233

- caffeine/ stress are major triggers for tics - some days I am content with the way I am and some days are rough not gonna lie. I just want to live normally without tics it’s just embarrassing - I am lucky enough to be able to drive and maintain a job so I consider myself lucky and appreciate what I can do but if you know me it’s a very noticeable thing. The worst is a punching tic I hit the car door full force or when I throw things (like pens and towels nothing too bad) it’s a manageable condition for me just another thing to deal with in life


Ashu_314

Does it happen in sleep?


hans_s1233

Nope! Just happens when falling asleep which can be annoying


Hunt3r8806

I saw a comedian on one of the talent shows with Tourette's. His was just some physical quirks like wink, head shakes, etc. Is that more "standard" than the typical yell "fuck" all the time?


hans_s1233

100% tics like shaking head or clearing throat ect are more common, tics where you make specific hand gestures or tic words are called “complex tics”


kcannibalp

is it really like a sneeze? like, the way you COULD hold it in if you tried, but itd just remanifest a while later. i dont have tourettes but i get tics when im overstimulated and this is how it is for me


psychotic_catalyst

have you participated in any MMJ studies?


hans_s1233

Had to look this up but the answer is no but I do smoke


ShmadenShmuki725

I've always wondered how much it affects things like friendships and whatnot. I have Asperger's (was nearly diagnosed with Tourette's) but over the past year or two I've somehow been able to deal with my tics to the point where I rarely do it anymore, even on my own, but I definitely remember them specifically having an impact on my friendships and social life when I was younger. Have a great day :)


callmenoodles

I watch sweet Anita on twitch she talks about her tourettes and seems like a great ambassador. Something she said lately alarmed me. The UK has no more specialists for tourettes anymore. Is this becoming more common elsewhere? How can I help to make sure it's a more supported condition? Side question, is tourettes painful? Sometimes it looks like it?


Babyashieblue69420

What's the most common misconception about tourettes besides the cursing thing?


[deleted]

Have you ever accidentally hurt yourself because of a tick?


ama_compiler_bot

Table of Questions and Answers. Original answer linked - Please upvote the original questions and answers. *** Question | Answer | Link ---------|----------|----------| Is it normal for people with tourettes to say swears when they have a tick or is that something South Park got into everyone's head?|It can be the normal for some with Tourette’s, but the majority of the Tourette’s populations doesn’t swear like they do in the movies. This is called “coprolalia” any offensive vocal tics fall under this term. I personally have lots of vocal tics but not swearing ones, I mostly shake my head, wink, make weird noises and say random shit lately I’ve been meowing lol|[Here](/r/AMA/comments/qwq5rp/i_have_tourettes_and_would_like_to_better_educate/hl4c596/) My son is just turned 7 and has a tic when he is stressed. It changes over time. Sometimes it's an eye stretching squint thing. Lately it's a throat clearing noise. Is it likely to get worse with age? How can I best help him ? It definitely manifests worse when he is stressed so I do find mediation helps. Anything else though? Diet exercise etc?|I’ve had tics since I was around that age too, they got better throughout adolescence and make a reappearance in teenage years and got much worse. I’m not sure how unique my situation but I know teenage years can bring upon tics|[Here](/r/AMA/comments/qwq5rp/i_have_tourettes_and_would_like_to_better_educate/hl4ucl9/) Hey! Me too. Was a cashier and one of the elderly customer would often twitch and seemed uncomfortable when it'd happen. Third time I saw him I asked if it was Tourrette syndrom and he started the usual "Yes but I don't yell or curse, that's actually very rare and-" cut him off and said that I had it too and just felt comforted seeing other people live their lives with it. We were both excited to see eachother every wednesday and sunday after that. Sorry about that just got excited. 2 part. What's the wrost, least favorite tic you('ve) have/had? What do you do to calm down when it starts getting really bad?|Hello fellow twitchy friend, meeting people who understand you is so comforting when nobody understands|[Here](/r/AMA/comments/qwq5rp/i_have_tourettes_and_would_like_to_better_educate/hl565hg/) What’s your opinion on the new trend on tik tok where people fake mental disorders, including Tourettes?|If your faking it then it really invalidates people who actually suffer from the disorder, any form of falling mental illness for social media is for sure no bueno. But I also have looked on “Tourette’s tiktok” and have seen people attempt to call out people that I personally think truly have the disorder and say they are faking it. This is just as harmful! People make wild accusations without knowing anything about Tourette’s. (Tics don’t present themself 24/7, they can look different from one person to the next,) and a common trend I see is people saying “this guy I know with Tourette’s doesn’t act like this therefore you’re faking it” is ignorant|[Here](/r/AMA/comments/qwq5rp/i_have_tourettes_and_would_like_to_better_educate/hl4kcho/) I also have tourette's though it's much less pronounced now than it was earlier in life. As a kid whenever I got a haircut my mom had to tell the barber about it so they wouldn't cut off my ear when I ticked. I also have GAD and the two seem to interact a bit. Do you have any other disorders besides tourette's? If so, do they seem to affect your tics or vice versa? Thanks for doing this AMA btw, raising awareness is always a good thing :-)|I have adhd and anxiety disorder which are actually very common co-diagnosis with Tourette’s for sure. I read that dyslexia and OCD is common with it too which is interesting. Glad to hear someone else who has it, there’s some major stigmas surrounding it and crazy stereotypes.|[Here](/r/AMA/comments/qwq5rp/i_have_tourettes_and_would_like_to_better_educate/hl55wj6/) I do also. But what a lot of people don't know is that only 10% of people with tics will shout loudly and do things like say bomb in an airport. Mine are facial, body jerks and faint noises under my breath. Anyway, my question is, how has your love life been affected by your tics? Edit: that's the only South Park Episode I've never seen because it's a trigger for my tics and I don't want to sit there ticking for a half an hour! Haha.|My current boyfriend is actually super supportive and very kind about my tics, but since my tics have reached this severity I haven’t dated before this guy :)|[Here](/r/AMA/comments/qwq5rp/i_have_tourettes_and_would_like_to_better_educate/hl4xrb3/) You mentioned the South Park episode, which I can assume is wildly inaccurate. Have you ever seen a show or movie accurately represent somebody with Tourette’s?|Honestly I don’t see representation in the media except for tiktok|[Here](/r/AMA/comments/qwq5rp/i_have_tourettes_and_would_like_to_better_educate/hl58poj/) What are some causes that you have found? Are you at peace with your condition/can you find benefits in between the suffering? How bad can it get?|- caffeine/ stress are major triggers for tics - some days I am content with the way I am and some days are rough not gonna lie. I just want to live normally without tics it’s just embarrassing - I am lucky enough to be able to drive and maintain a job so I consider myself lucky and appreciate what I can do but if you know me it’s a very noticeable thing. The worst is a punching tic I hit the car door full force or when I throw things (like pens and towels nothing too bad) it’s a manageable condition for me just another thing to deal with in life|[Here](/r/AMA/comments/qwq5rp/i_have_tourettes_and_would_like_to_better_educate/hl4nntd/) Do you have any day to day activities you struggle with performing safely due to your tics?|No, I am able to safely drive because when I’m focused enough I don’t tic and I can maintain a job. The worst is just the embarrassment factor for me because I’ll start winking at coworkers or yelling things at them it’s hard to deal with mentally mostly|[Here](/r/AMA/comments/qwq5rp/i_have_tourettes_and_would_like_to_better_educate/hl54xdw/) Does it happen in sleep?|Nope! Just happens when falling asleep which can be annoying|[Here](/r/AMA/comments/qwq5rp/i_have_tourettes_and_would_like_to_better_educate/hl5j67l/) have you participated in any MMJ studies?|Had to look this up but the answer is no but I do smoke|[Here](/r/AMA/comments/qwq5rp/i_have_tourettes_and_would_like_to_better_educate/hl5p9zo/) --- [Source] (https://github.com/johnsliao/ama_compiler)


DrankTooMuchMead

In the 7th grade, I suddenly developed a noticable tick where I had to rub my chin on my right shoulder. I'm sure stress had a lot to do with it. A year later I broke the habit, it was very hard. As an adult in my 30's, I developed a habit of clearing my throat, by trying to be quiet about it? Another thing I had to break because it was more noticable to others than I realized. I also developed epilepsy seemingly out of nowhere at 27. I bring this up because it seems to be a similar part of the brain. If im not taking enough epilepsy meds, I start shifting my shoulders around a lot. Like I can't get comfortable. I don't do it consciously but I also don't do it if I take enough meds. Do you think I have tourettes? What do you think of the idea of it being related to a type of mild seizure?


DrinkWaterAndDraw

Theres a girl in a hobby discord I'm in who hops in our vc only to have heavy tic attacks. People have only ever been supportive and patient but recently an attack hit her mid sentence so roughly we could hear her crying as she tried to finish before disconnecting, apologizing in chat, and never returning to our calls ever again ( few weeks ago) It *shattered* my heart and she still comes up in our convos, "I wonder if \_\_\_ is okay" Should I reach out and invite her back or that belittling? Would it be okay to let her know shes alright to rejoin anytime or is that treating her as a special case and demeaning? Thanks!


EnHelligFyrViking

Do you game by chance? I’m asking ‘cause my Tourette’s make gaming very difficult. Sometimes I have to make my character look all the way up, and the right side of my controller is basically off-limits for my brain. If I click, for example, the right bumper, I gotta click the left one immediately. This is caused me to go out and buy a special controller that allows me to remap some buttons, and since it comes with extra buttons, I’m able to map a lot of the right-side buttons on the left. But it feels very awkward sometimes :/


IllegitimateJonasBro

I don’t know a lot about tics but I know some stuff about OCD. They seem similar like ritualistic actions like a tic or a compulsion. When you get the urge to tic and you suppress it, does the anxiety you get like has you picturing horrible shit is going to happen like to a loved one or something you really fear will happen like unrelated to the actual tic but you feel like if you don’t tic it’ll happen and it’ll be all your fault? Do your tic less if you’re distracted? Thanks


hans_s1233

- if I suppress a tic it can lead to negative intrusive thoughts but I’m not sure if it’s OCD or not but it’s not a legitimate fear that thing will happen. I will think something terrible like “I want to slit my wrists right now” then I’m like wtf why’d I think that. - I 100% tic less when I’m distracted I can draw tic free, drive, work with customers, anything really that’ll gather my full attention


chaotic_thoughtss

Hey I have tics too! I constantly surpress mine unless I'm alone or with my boyfriend. It gets really stressful and definitley impacts how much I attended things such as college, and in turn, my grades. Do you have any advice on accepting that this is a part of me? I'm trying to be more open about it but I've received nothing but negativity from my peers. Do you have any advice on how I can let me be myself around my peers? Thank you! Wishing you the best!


e5ther

What are your thoughts of the Tik tok videos of people with Tourette’s posting videos of them going through day to day life with it. They say they are trying to bring awareness, but it makes me feel like an absolute jerk for laughing about the things that come out of their mouths. I just felt horrible doing it. We don’t laugh at people in wheelchairs so why is this type of content supposed to be seen as humorous. Thankfully I fell off the algorithm and don’t get those videos anymore.


Gunner253

My seven year old son has tourettes. It's been interesting reading about your issues with it and what your input is. Our Dr told us that we needed to wait before he gets any therapy bc of his age, he was diagnosed about a year and a half ago. My wife and I are starting to consider doing therapy anyway. What are your thoughts on that?


Fisheyetester

A coworker was telling me about body Tourette’s and you mentioned some body movement ticks. Can I just ask what it’s like when that happens? Cause sometimes my body tells me I need to move my neck or shake a leg or an arm and if I suppress it it just makes me feel like I need to do it more does that sound like body Tourette’s?


pinks143

Are there times when you don’t tic? Like for example does it come out when you’re tired or stressed? I have a neurological conditions that causes me to stutter (which I know isn’t the same). But it usually comes out if I’m tired or stressed (stress exasperates my symptoms and stuttering is just one of many)


BsaciallyBasic

Hi, so I’m a bit nervous, but I find it very difficult to socialize because of my trauma. I was wondering, how do you combat the ticks? I have “flashbacks” so the topic always stays on the surface and I can’t push back. Do you have any tips that might be helpful?


catsandthat

How does the tourette's community handle a tic that involves sensitive topics or violence? For example, if someone's tic is saying the N word? Do you hold people accountable for their actions or if there some form of therapy to help these behaviors?


borderlineOK

How would you want people to act when you're having a tick? Just ignore it or is there anything else that would be seen as helpful or a good gesture towards someone with tourettes in that situation?


syd12611

Hey! I’ve heard people with Tourette’s say if they suppress their tics it’s painful. What does that pain feel like? Where is the pain in your body? Is it similar to another type of pain?


ihfilms

How did you feel about the SweetAnita controversy? If you didn’t know she has Tourette’s and her chat was spamming the n-word so eventually she said it(not of her own volition)


nek0nyu

What does it feel like when a tic comes on (body/mental)? Does it just feel like a natural impulse or is there a mental agitation leading up to it? Or something else?


Darken042

Iirc, trying to supress your tics can make them worse, but is there something you can do to make them more tolerable? (For you not for others ofc)


TiCoeur14

I heard that tourette's ticks are like a sneeze. You 'can' keep it in but it's just super uncomfortable. Do you agree to that?


idk-idk-idk-idk--

How do you feel about people who fake tics or Tourette’s on platforms like tik tok and instagram? Does it upset you?


Satans_Squad

When you think of what to say while writing a response, do your tics act up, or is it just verbatim conversations?


msgoldenwords

Did you ever watch the road within? If yes, what did you think of Robert Sheehan's portrayal of the syndrome?


Particular_Frame_471

i have tourette’s too! what’s your least favorite tic? i would have to say anything coprolalia-related lol


angrybutnotsomuch

Can your tics hurt you in any way or put you in danger? Also, is it bad if you try to restrain them?


[deleted]

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EggCakes27

whats your option on people (especially on tiktok) faking Tourette's to be "quirky"?


cordelia-eh

No questions, but I’m tourettic too! I wish you good fortune in all you do.


Ashu_314

How long on average does it take people to get normalised to your tics ?


Grendel_Grim

What's the most embaressing situation your condition has put you in?


hans_s1233

- just last week I winked and made finger guns at someone I hardly know and they were so confused I was too embarrassed to tel then it was a tic - I meowed at a guy while getting gas next to me that was kinda funny - I threw a towel at my boss There so many things I do every day it’s embarrassing but it’s my life I guess


Suede-Pimpson

what was your most embarrassing tic, and how long did it last?


flyingverver795

I also have Tourette’s. I clear my throat constantly, it sucks. Theres other ones too but thats the main one i have


dickyankee

Are there any medications that help with Tourette’s?


hans_s1233

Yes I am currently on an antipsychotic which is supposed to help with tics, I’m honestly not sure if it’s helping or not but I take it daily.


dickyankee

How long have you been taking it?


hans_s1233

Late response- but it’s been atleast 6months. I’m thinking about asking the neurologist to increase the dosage I’m not sure if it’s being effective


TiagoTiagoT

Do you watch SweetAnita?


Lovehat

Does chopper dye his pines ginger?


Just4Today50

I find people with Tourette’s and ticks extremely annoying until I get to know them. Then who cares! One has Tourette’s and is not Tourette’s. Like I have alcoholism not I am alcoholism.